Craig Spence

WeThe15: One Out of Every Seven People in the World Has a Disability

 

In 2012, it was “Meet the Superhumans,” with images of heroic para-athletes.

In 2016, it was “We’re the Superhumans,” heroic para-athletes mixed in with images of everyday folk.

In 2021, it’s “Super. Human.” with the emphasis on Human.

Channel 4, the official broadcaster of the Paralympics in the UK, has, since the 2012 Games, captured and shaped the pop culture view of the para-athlete, and in a broader way, those with disability. Through the eyes of Channel 4, our view of the disabled has evolved.

In 2012, we needed our attention grabbed to even think of the circumstances of the disabled. For many, the para-athlete had to be portrayed as superhuman, placed on a pedestal so we could start a conversation about how inspiring the disabled are.

But the para-athlete no longer wants to be your inspiration, no longer desires to pose on your pedestal.

As disability rights activist and writer, Penny Pepper said in reaction to the 2016 Superhumans video, “the superhuman shtick is a tiresome diversion away from what is important. Let us be ordinary, let us be every day and let us at least have rights. Rights to independent living.”

People with disabilities want you to know that they are you, and you are they – just another person trying to get along in life.

A recently released video captures that tone perfectly: a man in a wheelchair responds to adoring statements of how inspiring the disabled are, with a single word of defiance.

“Bull$#!+.”

That short film is the clarion call for the “WeThe15” campaign, symbolizing the estimated 15% of the global population that are disabled. Launched on the eve of the Tokyo2020 Paralympic Games, WeThe15 “aspires to be the biggest ever human rights movement to represent the world’s 1.2 billion persons with disabilities.”

If people with disabilities had its own country, it would be the third largest in the world.

In other words, one out of every seven of your own family members, friends and colleagues have some form of disability, who may be marginalized or discriminated in some way.

It’s possible that you are treating people with disabilities in ways that are perceived as patronizing, divisive or hurtful without realizing it.

As the WeThe15 film explains, people with disabilities are not “the other.” They are the same as you.

People call us special, but there’s nothing special about us. We have mortgages. We kill houseplants. We watch reality TV. We get sunburned on holiday. We get married. We swipe right. We go on first dates, and get lucky too.

WeThe15 is a broad-based alliance of global organizations related to sports, human rights, policy, business, arts and entertainment, led primarily by the International Paralympic Committee (IPC) and the International Disability Alliance (IDA).

“WeThe15 is a decade long campaign bringing together the biggest coalition of international organizations ever to work towards a common goals: to end discrimination and transform the lives of the world’s 1.2 billion persons with disabilities who make up 15% of the global population,” said Craig Spence, IPC Chief Brand & Communications Officer.

“This could be a game changer of a campaign looking to initiate change from governments, business and the general public.  By doing so we can place disability at the heart of the diversity and inclusion agenda.”

Rainbow Bridge in Tokyo Bay in Purple, courtesy of Craig Spence

The goals of WeThe15, which are aligned to the UN 2030 Agenda for Sustainable Development and the Convention on the Rights of Persons with Disabilities, are to change attitudes and create more opportunities by:

  • Putting persons with disabilities at the heart of the diversity and inclusion agenda,
  • Implementing a range of activities targeting governments, businesses, and the public to drive social inclusion for persons with disabilities,
  • Breaking down societal and systemic barriers that are preventing persons with disabilities from fulfilling their potential and being active members of society,
  • Ensuring greater awareness, visibility, and representation of persons with disabilities, and
  • Promoting the role of assistive technology as a vehicle to driving social inclusion.

During the Tokyo Paralympics, you will see many references to Wethe15, including public light ups in purple, the symbolic color of inclusivity.

It is time to stand up for the 15, not because they are special, but because they are just like you.

So while the pedestals are nice, and the pity tolerated, we are not “special.” That’s not what it’s like. That’s not our reality. And only when you see us as one of you, wonderfully ordinary, wonderfully human, only then can we all break down these barriers that keep us apart.

– from the WeThe15 campaign film

Tokyo Skytree, courtesy of Craig Spence
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Tokyo2020 Paralympics One Year to Go: IPC President Andrew Parsons Says “Full Speed Ahead”

“I was supposed to be in Tokyo today, rehearsing my opening speech,” said Andrew Parsons wistfully.

It was a little after 8pm on Monday, August 24, 2020 Japan time. Parsons, the President of the International Paralympics Committee (IPC), was addressing members of 20 foreign chambers of commerce in Japan in a Zoom meeting. The event marked one year to go for the Tokyo2020 Paralympics.

The Paralympics would have kicked off in Japan on Tuesday, August 25, 2020 if not for the devastating and global impact of COVID-19 virus. It was March 24, 2020 when the fateful decision was made to postpone both the Tokyo2020 Olympics and Paralympics for a year. “That decision was not taken lightly, but it was the right one,” said Parsons. “Had the games been tomorrow, there’s no chance they would have happened.”

Putting the Puzzle Back Together

March 24 brought devastating news to the organizers in Japan. Yasushi Yamawaki, IPC Governing Board Member at Large and Tokyo 2020 Vice President said they were more than surprised.

“When the decision was made to postpone the games, most of the staff and partners, were very much shocked. They had spent seven years putting together the biggest and most complicated jigsaw puzzle. And with a few pieces to go, they were told to start over again.”

There are dozens of major sponsors, over 180 National Paralympic Committees, dozens of international sports federations, and thousands of athletes who had questions. But for the IPC, a huge question that had to be answered was how to ensure funding for Tokyo2020 in 2021. As Craig Spence, IPC Chief Brand & Communications Officer, explained, it was critical to re-do the contracts with the broadcasters first.

“From an IPC point of view, we had to review 300 contracts in the space of two weeks. We have TV contracts with 165 broadcasters. Each contract needed to be reviewed. And each contract impacted the cash flow of the IPC for 2020 because we were due money this year, but the TV contract was then moved to next year.”

And Parsons reminded everybody that this incredibly complex and urgent work had to be done in the challenging environment of a pandemic. “We had to manage our cash flow,” said Parsons. “But we also needed to work with our staff all over the world, many of whom were living away from their families during the most demanding period ever for the IPC.”

Parsons is hopeful, but he is realistic. He said that everything that can be done, that can be controlled, will be. Planning will continue through the end of September. The IPC will focus on countermeasures to COVID-19 in the last quarter of 2020, and then will enter operational readiness in the first quarter of 2021. After that, important decisions will have to be made.

“We still have one year to go. We will follow the development of the pandemic. Unfortunately, none of us have a crystal ball. We have to work as if the Games are going ahead. This is the tricky part – how to work towards something you don’t know 100% is going ahead or not. But at the moment we are working full speed ahead preparing for the Games as if they are happening.”

The postponement resulted in a re-planning process that prioritized two things: the safety and health of the athletes and an approach to budgeting only what is necessary, a sustainability mindset that can be applied to future Paralympics, something that Parsons calls the Principles. “In these principles, the safety of athletes Is the number 1 priority for us,” said Parsons. “Everything that is not fundamental for the Games will be downscaled or cut.”

No Question of the Tokyo2020 Legacy

The Paralympics were postponed for a year. But Tokyo2020 is already establishing a legacy in Japan. Yamawaki explained that Tokyo is one of the most accessible cities in the world for the disabled, and that the media showcases the capabilities and personalities of the Para athletes almost on a daily basis.

Spence shared comparative data showing the impact of the run-up to the Games.

“In the build up to London 2012 with 18 months to go, less than 1% of the British population could name a Paralympian, and everyone sees London as the benchmark. In Tokyo last year, 45% of the Japanese population could recognize Shingo Kunieda, the wheelchair tennis player. So that shows the real difference in interest. In terms of accessible transport, I think when Tokyo won the right to stage the Games, around 75% of the city’s metro stations were accessible. By the time the Games happen next year, that’s going to be at 99%. That would never have happened had it not been for the Paralympics coming to Tokyo. The legacies are going to be tremendous.” 

Yamawaki oversees the Nippon Foundation Paralympic Support Center, which is driving a groundbreaking education program in Japan’s school system. The IPC’s “I’mPossible” program – a toolkit of resources designed to engage 6-12 year old students about the Paralympic movement – is being pioneered in Japan with great success. Yamawaki said that this program has been delivered to 36,000 primary and secondary schools across Japan.

Children can learn from this unique learning opportunity,” said Yamawaki. “They will become future leaders in creating an inclusive society in this country after the Paralympics are over. It’s going to be one of the biggest legacies. Usually the parents teach the children, but in the I’mPossible program, kids teach the parents. This will increase parents’ awareness of the Paralympic Games and Paralympic sports. That’s the biggest impact we’re seeing.”

What You Can Do

Here are a few suggestions from IPC leaders on what we all can do to support the Paralympics broadly, and people with disabilities specifically.

Employ Persons with Disabilities: If your company does not employ persons with disabilities, it should. If your office is not set up to deal with people in wheelchairs, put in ramps. If you have a restaurant or a canteen, make your menus available in braille, or put your information on the internet so that people with disabilities can more easily access the information.

See the Opportunity: As Spence explained, before he joined the IPC, he didn’t realize people with disabilities are such great problem solvers.

“People with disabilities face challenges on a daily basis. They don’t tend to moan. They don’t just sit around thinking I can’t get around this. They always find innovative ways to get around and beat the challenge. They can bring a whole new creativity and new outlook to your business.”

Go See the Games: Seeing the Para athletes in action will change your attitude for life. Get as many people around you to see the Games.

“There’s very few people in the world who can run 100 meters in under 10.5 seconds,” said Spence. “Yet we have athletes with prosthetic legs and running blades who can do it in 10.4 seconds. It really does challenge perceptions towards disability.”

See my review for Rising Phoenix.
Rising Phoenix: The Stirring Netflix Documentary on the Paralympic Movement that Seeks to Change the World

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